If It’s, “We’re Expecting” How Come It’s Not, “We’re Disabled?”

I don’t know when it became fashionable to identify pregnancy as an adventure à deux.  It always seemed lopsided that pregnancy excluded men from throwing up, having swollen ankles and shrewish moods.  I’m not even talking about all those forever changes like stretch marks, a bigger butt, and wider hips.  With the possibility of gestational diabetes, postpartum depression, or miscarriage, the adventure becomes a challenge.

Not to make it one-sided, men’s experiences are extraordinary, too, and may include being the target of a woman’s whacky moods or being the late-night junk food scrounger.  For guys, it hits that the two of you are now a family, with all the attendant expectations to be the one who forevermore protects and provides.

Without a doubt there are many, many women for whom pregnancy is a delightful experience. The glowing, the growing, and giving life is an experience like no other.  Expectant women and moms belong to an exclusive club that has strict membership rules.  So even if it was the two of you being pregnant, only one of you, in the strictest sense, is a mom.

Talk about disability or chronic illness, and only one of you is out on that limb.  An “invisible disability” can pose even more challenges.

Our society looks for proof; needs to name it; needs to touch it or otherwise experience its reality.  You can’t be “a little bit pregnant”; you either are or you’re not.  Pee on a stick and you prove it.  With invisible disabilities, there’s no pee test.  For some people, taking it on faith is harder than believing that what isn’t seen is true.  For example, not being able to prove the existence of god doesn’t mean god doesn’t exist.

Obviously, it’s the emotion surrounding belief that counts; to disbelieve or doubt a person’s physical or emotional perceptions is tantamount to discrediting someone’s very existence.  The truth of it is immaterial while the emotion surrounding such thoughts is what count and may even be rooted in jealousy of a sort – “What, so you get a break but I don’t?”  “Buck up, you’re just being lazy.”  “I worked all day but I still have to make dinner and do the laundry and get the kids to bed before I can sit down and catch my breath and where are you? In bed.”

Quantification when invisible disability is present requires a different yardstick but most of all it requires belief, support, and compassion.

Adding a stress load to any system that is already compromised results in a predictable, and usually disastrous, outcome (think of how a building with cracks in the foundation responds to an earthquake).  The same thing happens when an already dysfunctional body system is unable to respond well when stressors are piled on.  Such stressors may include walking through a mall or having relationship difficulties.

“We’re expecting” or “we’re disabled” is an implicit bonding between partners.  Life-changing events happen from which there is no return.  Legal sanctions apply in both situations:  the 20% of women, nationwide, who are disabled are entitled to lifetime support; children until they reach the age of majority.  Society doesn’t seem to have recognized that the “we” of marriage with children and the “we” of disability in a relationship are the same thing.

To say “we’re disabled” says that both partners are in it together, that there is emotional and physical support of the partner who is less capacitated. Pregnancy usually involves the active participation of both partners while acquiring disability isn’t chosen by either partner.  Parenthood never ends, just as disability does not; a major difference is in the expected trajectory – that parenting gets more pleasurable once the nest is empty, while disability often does the opposite.  Disability is different in that there is no consent, no pre-planning, and certainly no enjoyment in acquiring the condition.

Copyright 2012 Kathe Skinner, M.A., L.M.F.T.

About Kathe Skinner

Kathe Skinner is a Marriage & Family Therapist turned Relationship Coach in private practice. She conducts Couples Retreats in fabulous places, offers webinars and holds Couples Communication Classes along the Front Range of Colorado. She and her husband David live in Colorado Springs with two hooligan cats. She has been diagnosed with multiple sclerosis for over 30 years.

Comments

  1. Trina C. Bradlee says:

    I Loved your article. I’d like to share it in a Traumatic Brain Injury Survivor group that I administer through Facebook. May I? Thanks, and All Best- Trina C. Bradlee

    • Hi Trina!

      You are welcome to post the link to this page anywhere you would like! However, the article cannot be copied and re-posted.

      Thank you so much!

      The IDA Team

    • Hey, Trina! I’m delighted you’ve found the article useful and “on the mark”. I’ve done work with the TBI community for many years although I no longer specialize in that. I do, however, specialize working with couples whose relationship is affected by a hidden disability. I’d love to have you share my “presence” with others (I keep planning to do webinars!). Do that link thing or whatever it’s called.

      I love getting the word out there’s a professional who knows the terrain of how hidden disability impacts everything about our lives…wow, it’s great to reach as many people as I can.

      Perhaps some of the webinars could be aimed at the TBI community’s needs. Let me know if I can help!

      Thanks, again, for relating to what I’ve written…feels good : ]

      Warmly,

      Kathe Skinner

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