Living with Debilitating Illness and Pain with Sherri Connell, IDA Special Guest Speaker

Sherri Connell Special Guest IDA Awards Gala 2013

Sherri Connell is the wife of Wayne Connell, Invisible Disabilities Association Founder and President and the inspiration for the organization.

Sherri led a very active life of singing and dancing in musicals, acting in commercials, modeling in fashion shows, working to put herself through college and riding her horse.

Sherri obtained two Bachelor Degrees and a Minor in Musical Theater. However, due to Multiple Sclerosis, Lyme Disease and Multiple Chemical Sensitivities, Sherri now struggles to take a shower, get a meal or go to a doctor’s appointment.

Because of people like Sherri and many others, Wayne and the IDA Board Members reach millions of people challenged by illness, pain and injury through the Invisible Disabilities Association. Thank you so much for joining us today! We hope you find the encouragement and support you need.

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe.

Visit Sherri’s Website!

 

Running the Race of Caregiving with Antarctic Mike and Angela Pierce

The Invisible Disabilities Association 2012 Honors Banquet at the Denver Marriott South at Park Meadows in Lone Tree, Colorado, on Sunday, Oct. 14, 2012. Photo Steve Peterson

The Invisible Disabilities Association 2012 Honors Banquet at the Denver Marriott South at Park Meadows in Lone Tree, Colorado, on Sunday, Oct. 14, 2012.
Photo Steve Peterson

Join Antarctic Mike and Angela Pierce as they take you on their amazing and inspirational journey of hurdles, sprints and counting of every little success on the way.

You will not want to miss this opportunity to watch this presentation from the 2012 Invisible Disabilities Association Honor Awards Banquet from the comfort of your home. Be sure to share it with your friends, family, groups, doctors and neighbors!

Mike is a professional speaker, executive recruiter, an avid adventure athlete, world record holder and a husband. Angela Pierce is a wife, a blogger and someone who lives daily with disability and has so most of her life. Together, they are an amazing team!

Mike has completed marathons in some of the world’s coldest climates including the Canadian Arctic, Siberia and twice in the Antarctic. He has set world records in endurance swimming and cycling as well. Adventure sports have changed Mike’s life in many ways, including teaching him the importance of being mentally focused and conditioned to run the most challenging and important marathon, that of helping Angela manage her lifetime disability.

Read more about Mike and Angela!

 

IDA Makes Top 10 Blogs for 2014

IDA in “Top 10 Guest Blogs of 2014″ on Disability.gov

IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov. We are elated to announce that IDA made the “Top 10 Guest Blogs of 2014.”

We are thrilled to receive this recognition for the third year in a row! We are grateful to be given the opportunity to bring about more awareness and education about Invisible Disabilities! Read full story.

Thank you to all of our guest CO-authors and readers who have commented and liked our blogs, showing your support for what IDA is doing!

It’s Not a Laughing Matter

Matt Iseman Invisible Disabilities 2014 But You LOOK Good Inspiration AwardA diabetic, a blind man and an amputee walk into a bar. The bartender says, “What is this – some kind of joke?”

Having a disability is no joke according to IDA Advisory Board Member and Neurohumorist expert, Karyn Buxman, RN, MSN. “But it can be a laughing matter. Pain, suffering, isolation, stress, depression, financial hardships – the problems can seem never ending. And to survive you need all the possible tools in your tool belt that you can find. One tool that is frequently overlooked is humor.”

“Science is affirming what we’ve suspected all along – laughter is good medicine. The benefits for you are so numerous that you are not going to want to wait for humor to happen by chance. You’ll want to be proactive and experience humor by choice. And the good news is, you don’t have to be funny. You just have to see funny,” says Karyn. “My mission is to improve global health and business through laughter and help heal the humor impaired.”

[Read more…]

Imagine!

Alanna Wong

Alanna Wong

Imagine a world where people have the time to spend with, learn about, and empathize with people faced with an unforeseen catastrophe. Imagine a world where family and friends would unite to take challenges head on while supporting one another through the hardships of life. The synergistic effect of embracing “we” instead of “I” would create a place of belonging for all. Below, I will share four important keys to making the world a more empathetic place!

Mindfulness: The first approach in advocating for an empathetic world must take place from within by practicing mindfulness. We can better help each other if we live by the motto: “Our actions taken should be in the best interest of others.”

[Read more…]

About Alanna Wong

Alanna has spent the past seven years dedicating her life to raising awareness for Kleine-Levin Syndrome (KLS) in an effort to help other sufferers. Alanna’s focus has been to raise funds for research, engage and connect with the community, and facilitate the KLS Foundation website. Alanna is writing her KLS memoir. You can read a FREE introductory section of her book here: http://alannawonglife.com/real-life-sleeping-beauty/ Alanna has been featured in numerous media outlets including: Anderson Cooper, ITV London, Sunday Night (Australia), The Sun, The Daily Mail, and Seventeen Magazine (Singapore).

IDA’s 2014 Invisible Disabilities Week in Denver and Online

2014 Invisible Disabilities Week 10-19 thru 10-25 IDA Banner

Join the Invisible Disabilities Association for our 2014 Invisible Disabilities Week Online!

Together, we can bring awareness, education and support to your neighborhood and around the world!

Invisible Disabilities Week on FacebookInvisible Disabilities Week on Google+  – Invisible Disabilities Week Website

10 Ways to Participate Now and Through October 25th:

[Read more…]

The Loneliness of Illness and Pain

Loneliness-Illness-Pain-Invisible-Disabilities-Association“You’re lucky you don’t have to work!” “You’re just giving up!” “You need to get out more!”

When we break a leg, are we better off hopping on it or using crutches? Right after having major surgery, would we recover better if we went hiking or if we rested a bit in the hospital? We all know the answer to those questions. Otherwise, there would be mountain slopes instead of gurneys outside of every operating room.

When dealing with a broken leg, it heals and the person returns to life as usual. On the other hand, for many living with ongoing illnesses, “as the illness progresses, [people] must adjust each day to the disease, sometimes severe, sometimes in remission, and always present. The sense of health and vibrancy is, at best, diminished, and at worst, lost,” wrote Jackson P. Rainer, Ph.D., a leading authority on grief and loss.

[Read more…]

My Disability May Be Invisible, But I’m Not

 

Hannah-Andrusky-Invisible-Disabilities-AssociationBut you don’t look sick.” “But you LOOK good.” “It’s all in your head.” “You just want attention.”

When most people are sick with the flu or a fever, they become pale and droopy and their hair is in a tussle. Therefore, when we meet someone who tells us he or she is ill or has an invisible disability, but he or she does not appear to be sick or in pain, we are often perplexed. Despite their appearance, we must realize that there is a difference between having a temporary cold or the flu and living day after day with a chronic illness or in chronic pain.

Many chronic conditions and disabilities are not as noticeable as a bad case of the flu. For instance, a person can battle symptoms such as extreme fatigue or cognitive impairments on the inside, even though he or she may appear healthy and well on the outside. Just the same, a person can have horrible pain or dizziness, despite the fact that he or she may seem strong and able.

[Read more…]

It’s Your Own Fault

Its-Your-Own-Fault-Illness-Pain

Have you ever heard the words, “Well, what do you expect?” when someone learns that a person is living with illness or pain caused by an injury from their job or hobby. Maybe that person’s job was full of risk, such as working in a gold mine as highlighted on the Discovery Channel’s show Gold Rush, or on a crab boat similar to Deadliest Catch.

Maybe they played sports and received multiple concussions and are impacted by the long-term effects or repeated head injuries. Former Colorado Avalanche hockey player Scott Parker knows this firsthand. According to Adrian Dater, a reporter for The Denver Post:

[Read more…]

You’re So Needy

You're So Needy - Illness and Pain“You could get better if you wanted to.” “You should just try harder.” “You’re being lazy.” “You need to be more motivated.” “You’re so needy.”

Have you ever heard any of these comments from friends and family members? Have you ever said one of these to someone living with illness or pain? Often when we come across someone who says he has been sick or in pain for a long time, we think he is either exaggerating or not doing something about it. After all, when most people get sick, they get some rest, take some medication and are soon back on their feet. So why can’t our loved ones do that, too?

[Read more…]

My Thoughts on Sharing Your Illness with Others

Alanna-Wong-Invisible-Disabilities

Alanna Wong

Everyone has a story to share – this is what connects us to one another, no matter our family background or where we come from. No matter what you’ve been through in your life, telling your story is the first step to creating meaningful relationships and building a strong support system.

People with invisible illnesses are often misunderstood, blamed, mistreated and judged. When we don’t acknowledge the truth of such illnesses, we are telling these people that they don’t matter or that they have no value. How will people heal if others don’t want to acknowledge that they have an illness in the first place? Society needs to understand invisible illnesses (many of which are neurological-affecting the brain and nervous system) are like any other condition that affects a different part of the body. Until this happens, people with invisible illness will continue to be stigmatized.

[Read more…]

About Alanna Wong

Alanna has spent the past seven years dedicating her life to raising awareness for Kleine-Levin Syndrome (KLS) in an effort to help other sufferers. Alanna’s focus has been to raise funds for research, engage and connect with the community, and facilitate the KLS Foundation website. Alanna is writing her KLS memoir. You can read a FREE introductory section of her book here: http://alannawonglife.com/real-life-sleeping-beauty/ Alanna has been featured in numerous media outlets including: Anderson Cooper, ITV London, Sunday Night (Australia), The Sun, The Daily Mail, and Seventeen Magazine (Singapore).

IDA Makes Top 10 Blogs for 2013

Type

IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov. We are elated to announce that IDA Made the “Top 10 Guest Blogs of 2013” on Disability.Blog by Disability.Gov. We are thrilled to receive this recognition and to be given the opportunity to bring about more awareness and education about Invisible Disabilities!

Read full story.

Thank you to all of our guest CO-authors and readers who have commented and liked our blogs, showing your support for what IDA is doing!

The IDA Team

 

Truly Caring is Healthy

Truly-Caring-is-Healthy“Why did I decide to found the Invisible Disabilities Association (IDA)?” This question has been posed to me on many occasions. The obvious answer is because of my wife, Sherri. As you may know, Sherri lives daily with progressive multiple sclerosis (MS), chronic Lyme disease, chemical injury and traumatic brain injury, as well as severe pain and bone crushing fatigue. I met Sherri in 1992 at the age of 28 after she was officially diagnosed with MS and Lyme disease. I fell in love not only with her, but also with helping other people who are living with invisible disabilities and pain every day. I wanted to be her champion and theirs, too.

But why care at all? Caring means being a part of someone else’s mess. Caring means moving from “it’s all about me” to “maybe, it is about you, too”. According to Google, the word “care” is both a noun that means “the provision of what is necessary for the health, welfare, maintenance and protection of someone or something,” and a verb that means to “feel concern or interest; attach importance to something.” I think that one shows he cares via kindness in both senses of the word.

[Read more…]

IDA Gala Inspires Reporter to Write About Fragrance Etiquette in Public Events

Dinner

Since the establishment of the Invisible Disabilities Association’s Annual Award Banquets in 2008, we have asked our attendees not to wear perfume, cologne or fragranced lotions. 

We have done this, because millions of people have reported adverse health affects with exposure to the chemicals in synthetically fragrance products.

We would like to share these quite bold and brave articles in response to our fragrance-free event requests. Thank you, Glory!

Etiquette

by Glory Weisberg, Society Editor the Fleurish Section, The Village Newspaper.

The Invisible Disabilities Association has its Honors Banquet, Oct. 24. Verbatim, here’s what’s on their info postcard, which we just love: “This is a Fragrance Free Event. Please be considerate of people attending with illness, allergies, asthma and chemical sensitivities by not wearing perfume, cologne or fragranced lotion.”

[Read more…]

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

Invisible Disabilities in the News with IDA Founder, Wayne Connell

IDA on Comcast Newsmakers

Press Release

IDA on Comcast News with Beverly Weaver

Parker, CO – September 30, 2013. Comcast Newsmakers reporter, Beverly Weaver, interviews Invisible Disabilities Association Founder and President, Wayne Connell about invisible disabilities. This interview aired several times in September 2013.

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

Mrs. Washington Contestant Understands Invisible Disabilities

Rosie Lohr, Mrs. Washington Contestant

Rosie Lohr, Mrs. Washington Contestant

My name is Rosie Lohr. I am currently Mrs. Moses Lake and I am competing for Mrs. Washington, because it is my mission is to bring awareness to the public about invisible disabilities.

I chose the Invisible Disabilities Association as my platform and my charity, because I want to give people with invisible disabilities a voice in Washington state and other parts of America. I desire to help people understand that just because a disability may not be readily visible, they should not be denied what they need and questioned at every corner they turn. It hurts. It is not their fault and they deserve respect and not judgment.

Why am I passionate about this issue? On October 8, 1998 I received a phone call while at work that would change my life forever. The call was from my father who was at work at ASIMS, a chemical plant in Moses Lake WA. I took the call and my father said, “You need to sit down.” My first thought was that something must have happened to my four month old daughter; I began to shake. He told me there has been an explosion at the plant and I needed to get to the hospital now. Jeremy (my husband) had been injured.

[Read more…]

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

Invisible Disabilities Association in The Denver Post

The Denver Post, Joanne Davidson. 11-17-13

The Denver Post, Joanne Davidson. 11-17-13

The Invisible Disabilities Association (IDA) is absolutely thrilled that The Denver Post took notice of the amazing work the IDA is doing to bring about awareness, education and support to millions of people living with debilitating illness and pain.

IDA’s passion is to bring about a better understanding of medical disabilities that are not always obvious to the onlooker, in turn restoring relationships for those who live with debilitating conditions. IDA does so through their websites, booklets, pamphlets, articles, seminars, events, videos, radio interviews and resources as well as our online community and social networks.

Annually, since 2008, IDA has given the IDA Honor Awards to individuals and organizations making a difference for those living with debilitating conditions.

[Read more…]

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

The Villager Newspaper Shines a Light on IDA’s Awards Night

Wayne Connell and Scottie Taylor Iverson, The Villager Newspaper

Wayne Connell and Scottie Taylor Iverson, writer for The Villager Newspaper

Annually, since 2008, the Invisible Disabilities Association has highlighted individuals and organizations making a difference in the lives of those living with debilitating conditions.

We have done so by giving awards to incredible people across the nation. Some have faced challenges themselves, others simply have a heart for those who are hurting.

We are honored to have Scottie Taylor Iverson spot IDA out of a crowd and join us on our amazing quest.

[Read more…]

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

Matt Barrett Gets His Wish to Attend 2013 IDA Awards Banquet

Matt Barrett Speaking at the 2011 IDA Awards Banquet

Matt Barrett Speaking at the 2011 IDA Honor Awards Banquet

Meet Matt Barrett, a “Walking Miracle” in Denver on October 24th. Matt will be autographing his book, A View from the Street.

Matt Barrett has lived a life most could never imagine. Matt has battled 11 forms of cancer and four brain tumors since he was just two years old.

As if that were not enough, because his face and body are disfigured by over 1,700 major surgeries, strangers have called him a monster, children have hidden behind their mothers, and store managers have asked him to leave the premises.

It is such a travesty when people are quick to judge Matt from the outside, because they are certainly missing out on getting to know this amazing person.

Animals sense Matt's gentle spirit.

Animals sense Matt’s gentle spirit.

Despite a lifetime of fighting cancer, being homeless off and on for most of his adult life, and enduring excruciating pain on a daily basis, Matt remains a giving and loving soul. 

Ask anyone who knows Matt and they will tell you he is a “Gentle Giant.” At 6 foot 4, over 300 pounds with a love for others as big as he is, his nickname seems fitting.

People on the streets don’t have a clue what they are missing when they fail to talk with this man and give him the respect he deserves. Those who hear about Matt’s journey are not only amazed, but inspired to be more appreciative of what they have.

For decades, doctors have called Matt a “Walking Miracle!” He has lived many, many years beyond anyone’s expectations. This has allowed him to continue his purpose in making this world a better place.

In 2011, Matt received a standing ovation as a Special Guest Speaker at the Invisible Disabilities Association Awards Banquet where there was not a dry eye in the house. Today, Matt was named an IDA Ambassador!

Matt has had many other accomplishments:

Matt Barrett and Sherri Connell, wife of IDA Founder

Matt Barrett and Sherri Connell, wife of IDA Founder

Although Matt has beaten countless odds, Matt’s prognosis is not good. Many doctors have told him he only has a matter of months or just weeks.

Thanks to the people who have rallied together to raise the funds, Matt’s wish to travel back to Denver for the 2013 Invisible Disabilities Association Awards Banquet is coming true!

Meet Matt on Thursday October 24th at the Denver Marriott South in Lone Tree. Details and registration: www.ItsNotAnIllusion.com

Matt Speaking at the 2011 Invisible Disabilities Association Awards Banquet

RELATED STORIES:

IDA Ambassador, Matt Barrett

A Lifelong Journey with Special Guest, Matt Barrett

Matt Barrett Gets Wish to Come Back to Attend 2013 IDA Awards Banquet

Matt Barrett’s Website, A View from the Street 

Order Matt Barrett’s Poetry Book, A View from the Street

Lifelong Battle with Illness Claims Man’s Face, Family but Not His Spirit. Martha Kang. September 27, 2013.  Picked up by Associated Press – Man’s long struggle with cancer nears end. October 15, 2013.

Photographer Tells Matt’s Story

Celebrate Life Event for Matt Barrett. May 25, 3013. Seattle, Washington.

Homeless in Seattle – Has helped Matt make 2 trip wishes reality through their supporters

Tent City 3 – Where Matt lived for three years

 

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

“Invisible Disabilities Day Oct 24, 2013″ Proclaimed by Governor Hickenlooper

IDA Founder and President, Wayne Connell with Colorado Governor Hickenlooper

IDA Founder and President, Wayne Connell with Colorado Governor Hickenlooper

Denver, CO – October 14, 2013. We are elated to announce the proclamation of Invisible Disabilities Day on October 24, 2013. This day was brought into effect by Colorado Governor, John W. Hickenlooper.

It was requested by the Invisible Disabilities Association in light of millions living with illness, pain and disability. The Invisible Disabilities Association (IDA) is a non-profit organization, based out of Colorado.

Invisible Disabilities Day

Invisible Disabilities Day

IDA has been encouraging, educating and connecting people and organizations touched by illness, injury and disabilities around the world since 1996. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

The Proclamation states:

  • WHEREAS, Wayne Connell, the founder and president of the Invisible Disabilities Association, established IDA in 1996; and
  • WHEREAS, his reason was out of desire to educate friends and family about his wife’s debilitating illness and a passion for helping others; and
  • WHEREAS, millions around the globe are challenged by chronic and weakened conditions and IDA provides programs and paths for understanding; and
  • WHEREAS, IDA strives to encourage, educate and connect people and organizations touched by illness, pain and disability; and
  • WHEREAS, with the help of IDA, we may envision a world where people living with illness, pain and disability will be invisible no more;

Therefore, I, John W. Hickenlooper, Governor of the State of Colorado, do hereby proclaim October 24, 2013, as INVISIBLE DISABILITIES DAY.

Join the Invisible Disabilities Association on Invisible Disabilities Day for “It’s Not an Illusion!” October 24, 2013 at 6 pm the Denver Marriott South.

Invite your co-workers, friends, family, neighbors, community and medical teams for a thrilling evening for a great cause!

Table Sponsorships and Individual Seats available. More Information and Registration: http://www.ItsNotAnIllusion.com

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by illness, injury and disabilities around the world since 1996. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!