Insights, Blogs & News
Introducing Gracie & Diane Dike, Ph.D.
Dr. Diane Dike is a woman who led a very active life, but it all came to a hault when she suddenly developed a rare disease called Cryoglobulinemia. Although she is in a great amount of pain, her life’s mission is to reach out to others who are suffering. She and her service dog, Gracie, visit hospitals, orphanages, prisons, churches and more. www.DianeDike.org “An endearing story about a dog that had a “ruff’ start, until she was adopted by Diane, a courageous woman suffering with a rare, painful and incurable disease- cryoglobulinemia. Gracie, an Italian Greyhound, rescued from death herself […]
Chronically Ill Patient’s Rights – Attorney Jennifer C. Jaff
Knowing your rights and how to fight for them is a huge endeavor when you live with chronic illness. Out of her own experiences with illness and disability, attorney Jennifer C. Jaff set out to find answers then became the Founder of Advocacy for Patients with Chronic Illness. Visit Jaff’s website for more valuable information, advice and advocacy services. www.advocacyforpatients.org/ Audio aired in 2008 for The National Chronic Illness Awareness Week’s Online Seminars. NICIAW provides Online Seminars M-F once a year in September on BlogTalk Radio. NICIAW founded by Lisa Copen, founder of Rest Ministries. IDA has been thrilled to participate in NICIAW, help spread the […]
A Time to Laugh by Karyn Buxman RN, MSN
“If you would just be a little stricter with him, I’m sure he would straighten up.” I stared dumbly into the face of one of Adam’s teachers, after my son had missed almost six months of school from debilitating headaches. My heart sank. My stomach twisted. This person saw my son in between his headache episodes and saw a typical teenage boy—laughing, teasing, joking around. What she hadn’t witnessed was the tortuous episodes that no doctor was able to diagnose; the painful attacks that began when he was 13 years old, out of the blue. Soon we saw a pattern […]
Cleaning the Kitchen … the POTSY Way
Kyli shares with others living with Dysautonomia/POTS (or other limiting conditions) some tips that she has found to be helpful around the kitchen. Even simple arranging or pulling up a chair can often make a big difference. “Just some kitchen cleaning tips. Let me know what you guys think of this new series I’m trying to do 🙂 I’m hoping as my week goes on & I pay attention to all of the little changes/adjustments I’ve made because of POTS, I’ll share them with you and learn some new things along the way.:) Love you guys! Kyli” Video Found at: […]
Tips for Organizing Your Home – Marcia Ramsland
Marcia Ramsland knows many of the challenges of living with chronic illness, as her daughter has started having health issues as a teen. Marcia is often called The Organizing Pro. As her website says, she offers time saving tips for everday life! Marcia is the author of a series of books to simplify your space, life and kids. You may have heard Marcia on the radio, seen her on TV or read her works in popular magazines. www.OrganizingPro.com Audio aired in 2009 for The National Chronic Illness Awareness Week’s Online Seminars. NICIAW provides Online Seminars M-F once a year in September on BlogTalk Radio. NICIAW […]
Tips on How to Pay for Medical Care – Jacqueline L. Jones
Jacqueline L. Jones went a search for help after becoming debilitated by fatigue and pain. Eventually, she was able to regain much of her health and created a program to assist others with money and time saving tips for seeking medical help. Jacqueline is the author of Unmasking a Diagnosis: How to Find Help for a Confusing Illness Without Filing for Bankruptcy. www.Jacquelineljones.com Audio aired in 2008 for The National Chronic Illness Awareness Week’s Online Seminars. NICIAW provides Online Seminars M-F once a year in September on BlogTalk Radio. NICIAW founded by Lisa Copen, founder of Rest Ministries. IDA has been thrilled to participate in […]