Insights, Blogs & News
My Story: Finally getting a Diagnosis
Kyli is an amazing young lady who, like many with invisible disabilities, had a hard time getting people to take her symptoms seriously. Here is her story about getting a diagnosis. “Note: Please remember no 2 POTS patients are alike. Please do not let my story discourage you in any way. Some people find treatment options that work very well for them and recover quickly. Some people even get better without treatment. Because we’re all so different and unique, it’s even more important that we share our individual stories so that others can find them and find comfort in the […]
This video is for you
Although Kyli struggles to get through her days, she loves to reach out to others living with her debilitating condition, Dysautonomia/POTS. “Just something I put together on the spur of the moment yesterday after reading some messages from you guys. Please don’t forget how amazing you are! Hugs, Kyli” Video Found at: http://www.youtube.com/user/chronicallykyli
Where I’ve been. and where are my videos?
AmazingGrace160 is a courageous young lady living with Dysautonomia/POTS. Like many, to look at her on a normal day, you would never know she is extremely ill. Here she shares a bit from behind the scenes of what she is going through. Video Found at: http://www.youtube.com/user/AmazingGrace160
Multiple Chemical Sensitivities Can Be Lonely
Sherri battles Multiple Sclerosis and Chronic Lyme Disease on a daily basis. She also lives with severe neurological reactions to chemicals that create synthetic fragrances. She is not alone, as the numbers of people reporting mild to severe reactions to these seems to be growing. “Exposure to perfumes, colognes and other chemical fragrances can cause people living with Multiple Chemical Sensitivities (Chemical Injury, Environmental Illness, Toxic Encephalopathy) such debilitating symptoms as migraines, pain, vertigo, memory loss, brain damage and worsening of condition with each reaction. … Sadly, many with MCS often miss out on family gatherings, special events and even simple visits […]
DysautonomiaMD: No More Tears Part I
Dr. Ferrante lives with Dysautonomia/POTS. She was a very successful doctor before the onset of this debilitating illness. Her research is now focused on her illness and helping others who live with this disorder. “First chapter of my book, written while bedridden and in/out of the hospital over time. I look at this book and I reread it. I still can not believe it is a book. Thanks be to God. May it speak to you most specially.” Dr. Margaret Ferrante Video Found at: http://www.youtube.com/user/DysautonomiaMD
Margaret Aranda-Ferrante, MD – Eyewitness LATV NEWS
A story about Dr. Margaret’s mysterious illness and her determination do research and spread awareness. News story by LATV News. Dr. Ferrante now dedicates her life to helping others with Dysautonomia/POTS. “Dysautonomia ME validation real disease unknown frustrating frustration suicide depression wheelchair walker cane naps rest hydration low blood volume eat more salt not intended as medical advice ask your doctor lots of love = LOL” Dr. Margaret Ferrante Video Found at: http://www.youtube.com/user/DysautonomiaMD