Insights, Blogs & News
The Plight of Invisible Disabilities
The Plight of Invisible Disabilities. Board Member of The Invisible Disabilities Association, Ginger Goins, gives plea regarding invisible disabilities, loved ones and understanding at 2008 Honor Awards Banquet.
Woman with Invisible Disabilities Wins Inspiration Award
In 2005, Sherri Connell received the Inspiration Award from Hal O’Leary and the Colorado Rockies. Sherri used to sing and dance in musicals, act in commercials, model in fashion shows, cheerlead and more. However, in 1991, she lost her career, home and horse due to very serious illnesses that cause her to need daily care. Sherri was a very active and goal oriented person until she was “stopped in her tracks,” due to disabling chronic illness and pain from Multiple Sclerosis and Lyme Disease. In effort to help friends and family better understand her losses and challenges, Sherri started writing in her journal […]
Things I Know Are True
Kyli lives with Dysautonomia/POTS. She is a courageous, persevering young lady who reaches out to others living with this often disabling disorder. She enjoys making videos that have helpful tips as well as those that are simply creative and enjoyable. “.. one night I sat down with pen & paper, and realized I knew all of these things to be true 🙂 Now I reread them whenever I’m in doubt. Hope you enjoy this video. XOXO, Kyli …. Music is “Painted Dream” by The Dada Weatherman. Check him out here: ww.myspace.com/thedadaweatherman.” Video Found at: http://www.youtube.com/user/chronicallykyli
Amys Lupus May 2010
Amy lives with Lupus. She reaches out to others to help them better understand what she and many others feel and go through. The video creates a visual picture of her life. “I do not own this song or lyrics.. Its Imogen Heap’s “The Moment I said It” This video is about my experience with lupus and trying to educate others about the disabling disease. I suffer from SLE (systemic Lupus erythematosus) I have more of the severe kind. I have had 8 TIA’s 1 pontine stroke, seizures, CNS involvement, Stage II lupus nephritis, Raynaud’s, Vasculitis, myositis, Serositis, Avascular necrosis […]
A glimpse of the last few months with autonomic failure.
AmazingGrace160 is an incredible young lady living with Dysautonomia/POTS. Here she shares what she has gone through in her recent hospital stay to fight for her life. “In 2008 I was diagnosed with postural orthostatic tachycardia syndrome/ Dysautonomia although I had symptoms since 2005 due to Guillain-Barre syndrome (paralysis). Recently my dysautonomia has turned into autonomic failure and this is a glimpse of my journey over the past few months.” AmazingGrace160 Video Found at: http://www.youtube.com/user/AmazingGrace160
My Story: Finally getting a Diagnosis
Kyli is an amazing young lady who, like many with invisible disabilities, had a hard time getting people to take her symptoms seriously. Here is her story about getting a diagnosis. “Note: Please remember no 2 POTS patients are alike. Please do not let my story discourage you in any way. Some people find treatment options that work very well for them and recover quickly. Some people even get better without treatment. Because we’re all so different and unique, it’s even more important that we share our individual stories so that others can find them and find comfort in the […]